A DIFFERENT PURPLE MONTH FOR SURE

-

  This year has been a very upside-down stress packed year for sure with Covid hitting. Nobody seems to know if they are really coming or going these days. Someway's we seem to get blended day by day into.each other. Its like we are just in one gigantic snowball this year where someday  time has less than no meaning because it's all being frozen or clumped in. We need  to break it all apart.

 When we don't get to see extra people it drives you crazy. Especially when you have regular things that you do like I do. Like when you have poker or my epilepsy meetings at least every second week with a couple of epilepsy friends. I would love to go out just for one small coffee with anybody at this point, just to break up the routine. 

 This is the month of November and it is epilepsy awareness month and that is hard for me. Because I haven't been able to see any of my friend's with epilepsy, oh don't get me wrong I love everyone of my online friends and advocates for epilepsy for sure. Sometimes it's just nice to be reminded of physical touch outside 4 walls. Lyndsay Ryan, Jennifer, Janet, Matt miss that contact.

Purple month via zoom has been kinda cool just not the same. Here is hoping we get things sorted soon in this chaotic world. Next year have an awesome awareness month with all our friends and family. 

  On a sad note but I feel like I need to go in I want to give a special hug to my friend. Elena who passed away this year. She was also a heart friend I wanted to attend to funeral and we almost were at the point again. Then covid started a vicious circle so  there was no funeral outside the family as needed be. 


Comments

Post a Comment

Popular posts from this blog

UNIQUE CONVERSATION

-
  Last month I had posted an entry about my average numbers of seizures in a day. Or at least what I thought were my average number that I was having. One of my epi friends and warrior Tiffany Kairos posted something to her story about the type of seizures she has and the number of them.   I sat back for a bit and thought to myself I knew my mom or dad or both were seeing a fair number that I was having. Like I knew that I would have between 2 or 3 a day average sometimes I thought 4 maximum of 5. I thought to myself the 5 would be my top out day so to speak. That was a relief in many ways.  Well I got a bit of a turn around where I showed mom the video that Tiffany did. My mom first said she felt bad but knew I understood the feeling. I asked her how she figured? Mom told me yes you know about 2 or 3 a day on average like your aware. Then often there are 5 more I might tell you about.  So more of a 6 to  in a bad day. She said with everything going on you ...
Read more

NEW BODY UPS AND DOWNS

-
 Today I found that I had both body freeze  and words disappeare from me. I was on the phone with one of my best friend's, she was talking to me through the whole conversation. Through much of the conversation I was freezing up for a good 5 10 seconds looking for the proper words. It has happened once before but it is or for me is a scary thing.  I almost felt like someone had taped my mouth shut, or cut my vocal cords. I knew what needed to come out but nothing was there to come out.   It was a very sureal feeling for sure, some have asked if it was like an out of body experience. In a way I would say that it was but I couldn't do anything in my "natural body" or on the other plain. A very almost enlighment of an experience at the same time a very scary one.   I certainly could feel myself having a mini panic/anxiety attack. It ended after I was no longer frozen that's why I use term mini panic and anxiety attack it felt like it lasted longer than tru...
Read more

FRIENDS FAMILY SEIZURES

-
 You may be wondering why I am adding seizures to this one. It will become clear in a bit. First off I'll start with my friends, I have always had very amazing friends in my life. At the same time I was putting myself in a bubble because I had always been in a catholic school. Outside of that I wasn't sure how to approach everyone the proper way.   Then when it came to my family that was the egg shell area for sure. Especially when I had to look at my side with the Christian side. It was very tense, of course I had certain friends and family i wanted to tell ages ago that's where the next part enters.  The epilepsy and seizures of everything. I never wanted too or purposely try and keep it a secret. So it was in back of mind I knew it was there and would have my seizures increase. So now my seizures have calmed more than they were over past years. 
Read more