DATING WITH EPILEPSY AND CHD

-

  Dating can be hard enough for most of us, for myself even more so. I have so many bridges to cross whenever I get into a new relationship. First off I have to tell the person I have never lived or been anywhere on my own. Then I have too tell them about my epilepsy and my congenital heart disease. After telling them all about that if they decide its still all cool I have to describe what happens during a seizure. Have to talk about all the types I have.

 Then I need to discuss my heart issue. Because its not a normal heart issue, well none are normal but a bit harder at time's. Especially after an incident happened to me. Sometimes it can be frustrating i just want my body to be on level with the "average person."  

 So often when I get into a relationship I feel like I have another older sibling. Like they are keeping to close an eye on me and will report every little thing to my parents. Like if we're  out and I have an absent seizure it dosent stay within us. Somehow it gets back to mom usually I confront her and says I just know. Or whenever I tried to confide to sister it would hit parent's within in a day so relationship things are so tricky.

Comments

  1. Lady AtticusNovember 4, 2020 at 9:00 PM

    I’m sure you will find someone who will accept you for you and who won’t go and snitch everything to your parents: when setting boundaries perhaps you can tell them that telling your mom everything is a deal breaker and a trust breaker for you. -Jess LeBlanc

    ReplyDelete

Post a Comment

Popular posts from this blog

UNIQUE CONVERSATION

-
  Last month I had posted an entry about my average numbers of seizures in a day. Or at least what I thought were my average number that I was having. One of my epi friends and warrior Tiffany Kairos posted something to her story about the type of seizures she has and the number of them.   I sat back for a bit and thought to myself I knew my mom or dad or both were seeing a fair number that I was having. Like I knew that I would have between 2 or 3 a day average sometimes I thought 4 maximum of 5. I thought to myself the 5 would be my top out day so to speak. That was a relief in many ways.  Well I got a bit of a turn around where I showed mom the video that Tiffany did. My mom first said she felt bad but knew I understood the feeling. I asked her how she figured? Mom told me yes you know about 2 or 3 a day on average like your aware. Then often there are 5 more I might tell you about.  So more of a 6 to  in a bad day. She said with everything going on you ...
Read more

NEW BODY UPS AND DOWNS

-
 Today I found that I had both body freeze  and words disappeare from me. I was on the phone with one of my best friend's, she was talking to me through the whole conversation. Through much of the conversation I was freezing up for a good 5 10 seconds looking for the proper words. It has happened once before but it is or for me is a scary thing.  I almost felt like someone had taped my mouth shut, or cut my vocal cords. I knew what needed to come out but nothing was there to come out.   It was a very sureal feeling for sure, some have asked if it was like an out of body experience. In a way I would say that it was but I couldn't do anything in my "natural body" or on the other plain. A very almost enlighment of an experience at the same time a very scary one.   I certainly could feel myself having a mini panic/anxiety attack. It ended after I was no longer frozen that's why I use term mini panic and anxiety attack it felt like it lasted longer than tru...
Read more

FRIENDS FAMILY SEIZURES

-
 You may be wondering why I am adding seizures to this one. It will become clear in a bit. First off I'll start with my friends, I have always had very amazing friends in my life. At the same time I was putting myself in a bubble because I had always been in a catholic school. Outside of that I wasn't sure how to approach everyone the proper way.   Then when it came to my family that was the egg shell area for sure. Especially when I had to look at my side with the Christian side. It was very tense, of course I had certain friends and family i wanted to tell ages ago that's where the next part enters.  The epilepsy and seizures of everything. I never wanted too or purposely try and keep it a secret. So it was in back of mind I knew it was there and would have my seizures increase. So now my seizures have calmed more than they were over past years. 
Read more