MY TWO PURPLE'S

-

  If course we all know that purple is the color for epilepsy and it is color I love. When I see the purple I know people are fighting epilepsy and have epilepsy advocates for them. The advocates always help us especially after we have had a seizure and they are there for us even just to talk about it. 

 Then there are several times where they tell me about the seizure I have had moments ago. And I tell them I don't remember a thing didn't know I had one. Then after some it's like I have lost a day or two even if the seizure only lasted 5 10 maybe 30 seconds long. It can feel like hours to body. 

 It's so cool to have purple day a day where epilepsy is recognized. It truly should be and is recognized on a daily basis of course by all fighters and advocates. But the one day is a larger feeling of I will and can conquer this. Plus yes you know all time you have a family but purple day it's a different feeling of family.

  Now if course purple is also in the pride flag. Now the purple dosent really represent me in the pride community as it is a representation of  bisexual. In some ways as many of people have said I do have a bit of this color in me. However not much at all especially finding Quinn-Davina I go by both names. But my identity is she her they them I've even had people use xe on me. I feel I found my purple in my LGBTQ and as I identify as a female I love 💕 my girlfriend. 

Comments

Post a Comment

Popular posts from this blog

UNIQUE CONVERSATION

-
  Last month I had posted an entry about my average numbers of seizures in a day. Or at least what I thought were my average number that I was having. One of my epi friends and warrior Tiffany Kairos posted something to her story about the type of seizures she has and the number of them.   I sat back for a bit and thought to myself I knew my mom or dad or both were seeing a fair number that I was having. Like I knew that I would have between 2 or 3 a day average sometimes I thought 4 maximum of 5. I thought to myself the 5 would be my top out day so to speak. That was a relief in many ways.  Well I got a bit of a turn around where I showed mom the video that Tiffany did. My mom first said she felt bad but knew I understood the feeling. I asked her how she figured? Mom told me yes you know about 2 or 3 a day on average like your aware. Then often there are 5 more I might tell you about.  So more of a 6 to  in a bad day. She said with everything going on you ...
Read more

NEW BODY UPS AND DOWNS

-
 Today I found that I had both body freeze  and words disappeare from me. I was on the phone with one of my best friend's, she was talking to me through the whole conversation. Through much of the conversation I was freezing up for a good 5 10 seconds looking for the proper words. It has happened once before but it is or for me is a scary thing.  I almost felt like someone had taped my mouth shut, or cut my vocal cords. I knew what needed to come out but nothing was there to come out.   It was a very sureal feeling for sure, some have asked if it was like an out of body experience. In a way I would say that it was but I couldn't do anything in my "natural body" or on the other plain. A very almost enlighment of an experience at the same time a very scary one.   I certainly could feel myself having a mini panic/anxiety attack. It ended after I was no longer frozen that's why I use term mini panic and anxiety attack it felt like it lasted longer than tru...
Read more

FRIENDS FAMILY SEIZURES

-
 You may be wondering why I am adding seizures to this one. It will become clear in a bit. First off I'll start with my friends, I have always had very amazing friends in my life. At the same time I was putting myself in a bubble because I had always been in a catholic school. Outside of that I wasn't sure how to approach everyone the proper way.   Then when it came to my family that was the egg shell area for sure. Especially when I had to look at my side with the Christian side. It was very tense, of course I had certain friends and family i wanted to tell ages ago that's where the next part enters.  The epilepsy and seizures of everything. I never wanted too or purposely try and keep it a secret. So it was in back of mind I knew it was there and would have my seizures increase. So now my seizures have calmed more than they were over past years. 
Read more